Val you seem to be very angry with the world, I think we have all been through this in life, I know I have, more than once.  I know that you are reasonably new to the board and welcome, I have learnt a lot from this board and made many friends, who have supported me through my times of feeling down, angry and frustrated.  I wish you and your son well.

The issue of surgery for girls I feel is a personal one and I feel we should not judge on what parents do and have done, because until you are actually in their shoes, you wont know, yes we can imagine, but until you have been through those choices with the guidance of doctors who you trust, I feel it is difficult to really understand.  I have a son with CAH.  I do feel the girls have a rougher ride than our boys, but CAH is a rough card in life to have been dealt.  I think what we really need to do is to educate the medical profession, if they were more knowledgeable about CAH and looked for the optimal treatment, then all our children would fare better.  Money is needed for research and I dont think CAH is very high on the list for funding.  We somehow need to combine our knowledge and experiences and get them to take them on board.  Quite awhile ago, we were even thinking of setting up a database regarding what problems our children had.  Look how some members here were instrumental in having the liquid cortef withdrawn!  Why is it when someone posts about their surgery, this board changes?We all ant the best for our children.

Teenagers do have mood swings, some children have extreme mood swings CAH or not, hence the terrible twos, our children are unfortunate to have the problem of excess androgens too.  I admire Amiee, it is so brave to talk about her problems and thank you Aimee for your posts.  I think counselling is undervalued, I feel parents should have the support of a councillor too. 

Danny, you choose to educate your children yourself and you say that children take on board what parents think, I think peers too have a great influence, why do you think there is such a drug problem in the world?  You cannot live in society and ignore it (not that I am implying that you are), we are all different, but here on this board we all have one thing in common, a child/children with CAH. Please do not let us get to the point where people feel insulted, we all turn to this board for help. 

A new parent has just written in, scared and probably numb, now with fears of what she may have to face one day, my son is a severe salt waster but his moods are normal, even when his levels have been out - he is affected differently.  Each child is different maybe this is what makes CAH so difficult treat!  My post is not meant to criticise anyone, I just dont want anyone to feel insulted or hurt, life if is difficult enough