ValI hate to say this Aimee, but I think as far as androgens go and levels perhaps you got lucky and had a good endo.......meaning he kept your levels pretty good....quite frankly I have no interest PEOPLE who do not want to look to the future as far as this condition is concerned. Some of your peers with CAH would probably disagree with you if you visited the LOCAH board. If you handle stress well that's good........but my son isnt doing.......and NO amount of SELF TALK or TRYING TO IGNORE IT is going to solve the root problem. I can see you want to ignore all the above I have just written........and in a sense.the only reason I am bringing it to peoples attention, is because it is as valid as all the physical symptoms at the end of the day. Like I said YOUR an adult and have had time to develop coping strategies. Ash hasn't yet. Also, I want optimal growth not just in height but intellect and healthy mental attitude. Do you know that here in New Zealand we have one of the highest rates for teenage suicide????? You can see why this is very imprtant to me then. I have read of boys that have rebelled and not taken their medication and died. I have read of many people diagnosed with BI Polar disorder and kids diagnosed with ADHD when they had LOCAH or non classical CAH. Do we really want to ignore this issue and hope that it will go away. Currently it is not standard practise for a psychiatrist to test for CAH or LOCAH. Everybody needs educating in my opinion. Instead of putting your energies into advising me to accept my son's behaviour, why don't you put them into accepting you handle stress differently and investigating it further. I did and that is why I'm here on your board. People need to know these things.
Val