CarolHi Lisa,
I just read your note to Beth about your daughter being on dexamethasone. Wow...I thought we were the only ones! I have never run across another child around my son's age (he just turned 8) on this mb on dex (though, of course, I have my own theories why this is.) This is quite exciting!
Where does your daughter get treated, and how old was she, at diagnosis? I would love to compare notes with you. You can email me, if you prefer, by clicking my name (in blue) below. Thanks!