If JFK were around today, or in recent years, I bet that Addison's (and other adrenal disorders) would be much more well known.  Just as Pres. Reagan suffers with Alzheimers, it gets alot of press.  I often think that is what it takes for the research.....the Press.  I don't mean to act cynical.  I accept that CAH is rare and not on the top of the list.  I think its great that you even thought about that!!!!