Duke Medical Center.
8/11/01 10:35 AM

Are there any parents on the board who's kids go to Duke for their CAH treatment.  I recently found some new research being done on Addison patients in the UK.  The research team recommended that Addisons patients who produced no Dhea would benefit from a replacement therapy regime of Dhea.  I gave a copy of the paper to our endo for his thoughts on a replacement program for Liam (CAHypoplasia) but have heard nothing back.(7 weeks).  I am hoping someone on the board would have an impression if the Duke team could be more progressive in approaching a possible means of improving quality of life for CAHypoplasia kids.

ShaunP.

ShaunP.
Rare Disease Search Engine, Homeschool Sites, Online Homeschool, Online Income, Ethical Adsense, Creative writing, Family Web Hosting, Christian Radio, Tulsa Parks