ShaunP.Are there any parents on the board who's kids go to Duke for their CAH treatment. I recently found some new research being done on Addison patients in the UK. The research team recommended that Addisons patients who produced no Dhea would benefit from a replacement therapy regime of Dhea. I gave a copy of the paper to our endo for his thoughts on a replacement program for Liam (CAHypoplasia) but have heard nothing back.(7 weeks). I am hoping someone on the board would have an impression if the Duke team could be more progressive in approaching a possible means of improving quality of life for CAHypoplasia kids.
ShaunP.