Hi Beth,

    It must be very scary and frustrating to have your son going through this.

    I have classical adrenal hyperplasia and at a couple different times in my life I would not take my medication. Like your son, I was very angery ( still am at times ) and like you said in your letter the medical examinations were horrid.

    My purpose in writing is to let you know that many people with CAH feel angery about the medical exams and having CAH in general. I used to think, why should I have to take this stupid drug. I feel fine. For awhile, I was mad that because I have CAH, I would never be able to serve in the military. At another time I thought ....well if I have to take this drug maybe I never should of been born. I had to choose to want to live.

   For now, if this was my son I would ask the endocrinologist if you could hide his medication in his food. This is just an idea, don't do anything without asking the endocrinologist. Then, I would ask about getting him into some sort of support group. As a very last resort, I would consider Baker Acting him. If he doesn't take his medication he is a danger to himself and also to others if he passes out while driving. 

    My heart goes out to you and your son. I hope that he can get through this.

Aimee