Re: Help, my 18 son refuses meds - Long chit chat
8/20/01 10:16 PM
Betsy, I am so sorry to hear of your heart wrenching situation. I read and re-read each and every response to you and found that ALL of the suggestions are valid and worth a try albeit you are the only one who can decide which would speak to his heart the best. Although you didn't directly say it, I assume that your son lives at home with you. The teens are a very tough and trying time in everyone's life so this does not help the matter. Nobody wants to be different from their friends and he could be seeing taking his meds as a weakness or an oddity especially when he is not in good control. I spoke with my husband in depth about this as he had a very rebellous teen-hood. I came up with the idea that he needs to learn that there are consequences to every action. One of the things that frightened me most (besides the fact that he could get deathly ill) is that he could be driving and cause harm to others. My thought here was that the consequence of his not taking his meds could be not being able to use the car until he proves to you that he is responsible enough to take his meds on a regular basis. Another thought came to mind that perhaps his close friends (if he hasn't pushed them away) could have a sort of intervention of a friendly nature where they tell him how valuable and special he is in his own way as we all are. Each person can take a turn sharing what they feel makes them unique in their own way. I have come to realize that EVERYBODY has a story to tell. In situations like that, once the ball gets rolling it is difficult to get it to stop. Even if Kevin doesn't participate vocally, it is highly likely that some of it will sink in and he may even begin to feel special that others have taken such an interest in his rare disorder. Also remember that these are the years where they need to feel that they have a choice and say in whatever happens to them. You can creatively let him feel that he is in control of making a choice for himself while you select the options from which he will choose. If he is suffering from clinical depression (which it sounds like he could be), he may be more willing and open to the suggestion of seeking someone to talk to about the problems with CAH. Betsy has a great suggestion about finding someone who is experienced in this area. One of my pet peeves is that proper counseling and follow-up is woefully lacking in this area. This individual can also help to decide what, if any, meds he may need to get him through his depression. I don't know if you are aware of this but there is a high incidence of depression that accompanies this disorder. I believe that it stems from an imbalance of the hormones in the brain and, especially when he is not in good control, can cause severe mood swings, deep depression and anxiety. Perhaps he can visit Danette's board or even the LOCAH board so that he can see that he is not all alone in his struggles with CAH. Beth, don't forget counseling for yourself, your partner AND your other son Brad. Clinical depression can effect the entire household - not just the person who is suffering with it. Perhaps someone from this message board can recall the address for the memorial page of the college boy who passed away after a period of not taking his meds regularly. If I recall correctly, he died alone in his apartment. It is a tragic story but one that just might speak to your son's heart. Again I stress that each person is an individual and responds to things differently. You may just find the answer from one of these compassionate, caring people on this board. At the very least, you will have their prayers and support. Please keep us posted with your progress.
LynnT
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