Erin- It's Valerie again. I just noticed your message to Nicole. Your daughter is just getting diagnosed at 4 1/2? That would mean that she is not salt-wasting, right? My son was diagnosed at 17 days old and it was a shock as I nor my husband had ever heard of it. But now 9 years later most of the time I feel like an old pro! Before you know it, you will too. However, believe it or not, I actually lie awake at night and worry how things will turn out as he gets older. My husband thinks I'm crazy, he says we'll cross that bridge when we get there. I don't know maybe its just a mother thing! How did you find out? My only advise at this point would be to make sure your going to an excellent pediatric endo. That alone can make all the difference in the world. I truly wish I had had a computer back in 1992 so I could have reached out to others back then when I was scared and felt alone. Just to have been able to talk with others would have been wonderful. I have e-mailed Nicole but had to run to do an errand but I 'm hoping to touch base with her again. I'm  trying to find out about the "chatroom" , it would be great to get in there instead of E-mailing and leaving messages, so that the conversations could be more lenghtly. But I am truly computer illiterate and don't know if there is scheduled times that people go into it or what. Feel free to e-mail me - I'd welcome a chance to talk(if thats what its called!)          Valerie  (vadrjd82@home.com)