ValerieErin- I am in Rhode Island and my son is 9 yrs. old. He is CAh salt-wasting. I also have a 13 yr. old daughter who is not affected. You'll find some more info under another message I have left for you. I also am overwhelmed and grateful for this opportunity that is why i keep checking for the messages for responses because I don't want to miss any. When my son entered kindergarten I was so shocked of how difficult the school system was going to be on me. It was awful, extremely stressful. To make a long story short, my sister in law was going back to school and had to do a thesis on a ped. patient with a chronic illness so naturally she turned to us. But she turned out to be more helpful to me with my school situation. She had a computer I did not. She came in and found MAGIC foundation which is wonderful, do you know about that? and also, she had me over to visit a chat room and I remember a woman by the name of debbi Watson. I tried to find that chatroom now that I have got a computer (1 week ago!) and I can't get into it. I think I have to register in Yahoo! but to be honest I am a little afraid because I'm so new to all of this. But anyway there is a Debi Watson listed on this board and I have tried e-mailing her aor a person named Debi Watson but have not yet received a reply.I know that this is getting long and I apolgize I just desperately want to touch base with people. Do you know anything about the chatroom that you can click on at the beginning of the page?
Valerie