Hi Valerie.  Thanks so much for connecting!  I don't know what I am doind here either, I've only had my computer a month.  I don't know how chat rooms work.  But it seems there are a lot of responses to your question.  Thanks for the info about MAGIC, I'll have to check that out.  My daughter is in Nursery school, never occurred to me to tell them about this, but we've only just done the first blood draw for her a week ago so we don't know the severity of anything!  I do knowtht all that ACTH in her blood created symptoms.  I don't get that -- it seemed even to encourage a growth spurt she was headed into -- she's tall, but they seem to think she's on target for her family.  I think she's ahead.  I wish I already knew more than I know (I wish I knew all I'll know in a few months already!).  also, I'm in New York, aren't you in Rhode Island? -- Erin