AimeeDear Shaji,
Thank you for your supportive post ! My purpose in writing on this message board was to show parents that even with this funky birth defect we can work through anything life has to offer. Even if things look kind of bleak at the time.
People would describe me as a bubbley, funny, and perky person. I get complimented on my smile at least every other week. Yes, at times I have had depression and horrible anxiety but I also deal with it. My endocrinologist always tells me a positive attitude can help someone with CAH. He even talks about meditation and yoga. I'm not talking about cortisone levels here. My cortisone levels are perfect and still I was walking around in a depressed fog, exersize is a big help in getting rid of that fog. I used to flip out going to see the doctor. Now, I'm very calm about it. Rational behavior modification is a life saver. You hear about how people with CAH dislike doctors and that was me at one time also. Now, I have no problem with them.
I work in retail. In the past I've worked at social service agencies. I like kids but I do not have any of my own. Just turned 31 but I don't look a day over 27. My family is in Michigan and also in Florida. On the weekends, my friend and I go to night clubs that are across from the beach on the Ft. Lauderdale strip. I like to dance and I also enjoy working out at my health club. Because I take prednisone, it's good that I enjoy working out. If I didn't do it, I would be huge. LOL
It is great that there is so much information out there about CAH. When I was growing up, my parents knew next to nothing about CAH Parents today are so much better off because of the knowledge that the doctors have gained in the past 30 years. It make me proud that because of what the doctors at the U of M learned about CAH in the 1970s by studying me they were able to help the children that were born after me.
Aimee