Good Morning!

My son is 7.8 cronilogical years, 12.6 bone age, cah non sw but on florinef because of his intake of salt.  He has migraines, the cause is yet to be diagnosed and is on medicatin for this. He also has CPP and is on daily Lupron injections.  I feel it is the Lupron giving him the migraines.  I also think the Cortef is why he has a tummy ache a lot of the time. Asthma meds when needed.

He tires very easily and much faster than those his age, sweats a lot to the point he is dripping wet and has to change his clothes. 

He sometimes has "spells"(for lack of a better term) of crying and not being able to stop and he doesn't know why he is feeling like this.  This is very heartbreaking.  This is not behavior of a normal 7 year old.  There is a definate difference between these "spells" and a typical 7 year old.

My son is overweight, puffy face since January 2000. 

 He started having daily site reactions to his Lupron since June 2001.  He tried the 28 day Lupron 3 times starting in June 1998 the reactions were awful.  In September 1998 he started daily Lupron injections.

He complains that his legs hurt almost all the time and has to sit and rest. He also complains of his heart hurting.

This Sunday, September 9, 2001 he is going to the NIH for testing to see if he will be accepted into the study on CAH.  He has numerous problems that I feel are not being addressed with his current endo.  I feel all the meds that he takes also have side effects that the doctors try to fluff off.

Sorry for rambling on.  I just want honest answers.

Diane