WOW...a special thanks to Lynn and Julie.  I will try to answer all your questions now!  thank you for your input and support. 

Charlie also uses deoderant and has had pubic hair since he was appox. 18 months old. long story and those doctors are GONE!

charlie's testing is every 3 months, with the last tests in july.  they decreased his cortef for over suppression, but all other levels are good.his bone age was 12.6 years with a cronilogical age of 7.6 years.his GnRH Stimulation test is scheduled for Sept.

my maternal instincts tell me that he is over suppressed with other problems lurking in the background and an endo who is overwhelmed with patients (or tired of my questions) and can't (or won't) take the time that Charlie's health needs. 

The above reason, the problems with the Lupron, and problems I also feel from the Cortef is how I made the decision to go to the NIH.

I too, know from experiences with Charlie, that physical activity and mental stress has a HUGE impact on children with CAH.  The endo feels this is not true.  I strongly disagree and feel if any of these doctors would get their head out of the "text book" case and see each individual and compile the data that parents are giving them, I think our guidelines from the doctor's would be different on what is "stress" to a child with CAH and when to increase the child's dosage.

I look forward to meeting Dr. Merke and her staff, Meg especially.  I have spoken with Meg several times and feel they would like to help Charlie and find out what's really going on.  Dr. Merke has called several times, unfortuntally I missed all her calls but her messages alone were informative.  Meg and Dr. Merke also seem to be very prompt in answering questions and getting any information that you request.

Thank you ALL again for information, advice and support.

Diane