Hi Melanie - I know exactly what you are talking about. When my now 9 yr old was around 1, he woke early one morning and proceeded to vomit. I paniced because the doctors had not given us the prescription and instruction for the solu-cortef yet. They felt that under the age of 2 to just get him to the ER asap in any situation. (They were well aware that we live literally 6-8 min. from hospital) When I arrived and tried to tell them what he had and that he needed this injection, they all looked at me like I had 3 heads. Like who would make this up?  I told them to page the endo and gave them the number.When he called back 1 1/2 min later, they payed attention.They even tried to tell me that his florinef was a flouride supplement!!! After that lovely experience, I wised up very quickly. First, at the next endo appt., I told them what had happened. (Funny, the ER nurse told him that I was completely hysterical and was making no sense!) Next the doctor gave me a card with the office number , his pager number and his home phone number (and the others in the group) . I laminated it and carry it with me in the emergency medical kit that I carry with me everywhere we go. Fortunately, he has had only 1 crisis, and it was almost exactly one year later. We had to call 911 and we arrived by ambulance. Once again, they looked at me like I was crazy. This time I used a different tactic. I remained very calm (not easy when your are scared to death inside), spoke softly yet firmly and presented the card. I said that my childs ped endo insists that he be contacted immediately regarding my sons CAH. If they are not aware of CAH, then I suggested that they go find someone who does and NOW! I told them that I was sure that if anything bad happedned that I'm sure they wouldn't want it to be because they didn't act quick.