Just thought I would remind everyone that a newborn screening for CAH (and other disorders) is not the same as testing. A newborn screening is meant to catch most. Depending on the disorder, the percent caught will be different. With CAH, the new born screening is only for the 21-hydroxylase defficiency which 90-95% of those with CAH have, and not all will be caught. The screening also will not catch a CAH child with a different deficiency, e.g. my daughter is 11-beta-hydroxylase. While there can be problems with testing (e.g. ACTH stimulation test,) is much more accurate. Take care,