Hi All

I've been a passive visitor to this site since my secondborn daughter was diagnosed in mid 1999.  Thanks to that diagnosis, we found out my firstborn also had CAH (non SW).  I want to thank all who have given words of encouragement and support that tremendously helped douse my early hysterics .. due to lack to information :") 

Over time, we're calmer, more knowledgable as we've gotten accustomed to living with CAH, no more hysterics ... until recently.  My daughter is managing well but my son is out of control.  Under 3 monthly follow up check up with bloodwork, we've managed to see that his levels were slightly high but not alarmingly so.  But he was always been above the growth chart.  This went on throughout last year.  The pead made several changes to his dosage.  The pead increased his dosage to 5mg morning and 10mg hydrocort nitely + 0.05mg fludrocortisone morning since they've already given him max dosage of hc according to his bmi.  Last month, we took the annual bone age and the result was alarming !  My son is 5 years old with a bone age of 11 !!!!!  So the pead decided to increase his med again to 10mg hc morning and 10 mg hc at nite incl the fludro.  The pead has insisted that we see him again in mid Oct (1.5 monthly instead of the usual 3 montly visits) to assess his bloodlevels.  The peads are doing their best to stike the delicate balance but I'm still angry that my son has lost 6 years of his growth and that i can't do anything about it

I cannot understand how the bloodwork doesn't correspond with the bone age. Or at least give an indication/early warning of the rapid growth.  Has anyone encountered a similar situation.  Can anyone explain ?