SandraMike,
I had posted a message for you earlier but it is gone! Not sure what is going on here!
Anyway, I wanted to welcome you to the message board. It is a great place to ask your questions and get feedback. I too have a, now 13 week, old son who was diagnosed at 4 weeks with SW CAH. We had a DNA test done and it seems like he is more of a SV according to his genes. That is another long story. I am curious as to how your son was diagnosed? Is there newborn screening in VT? Mine was through newborn screening. I had serious denial for many weeks. I hope you and your wife are doing OK with this diagnosis. I would love to talk to you or her and offer any moral support I can. I know it must be a hard time for you. Is this your first child? I have three boys. I am currently getting my other two older boys tested. So, please feel free to email me or post questions for me. I am here to help as I was helped by so many special ladies on this board.
Sandra