Interesting thing.  Dr. New has put my entire family (sisters) under her research protocol.  We ALL, including my 2 1/2 yo have distinguishing characteristics pointing to CAH, whether it be LOCAH or just gene expression.  Anyone interested in this feel free to e-mail me.  Families do not always talk amongst themselves about "private" matters, but my sisters and I are extremely open with each other, and in light of my infants birth and her CAH diagnosis, we all shared things about ourselves that none of us had ever discussed before.  The symptoms are so strong in our family, it has peaked the interest of researchers.  I will be happy to share more information with anyone interested in this privately.