I hope this isn't your "final" post on the CAH board. Please let us know what happens and if any of us can be any help to you....perhaps an email pal or whatever.  The CAH message board has been a life line for me since 1997... and the email buddies that I have gained are wonderful!! Like family to me!! Feel free to email me anytime -- I live in the Washington DC area. preston@kreative.net

 

The NIH for the CAH studies is:

Meg Keil, MS,CRNP
Nurse Practitioner
NICHD/ DEB
10 Center Drive
Bldg 10, Room 10N262
Bethesda,  MD  20892
301-435-3391
FAX 301-402-0574

 

If you want printed information to present to the courts try these web sites:

http://www.rch.unimelb.edu.au/publications/cah_book/

http://pedsendo.med.cornell.edu/new.html - Dr. Maria New does CAH genetic
testing
http://www.bdid.com/cah.htm
http://216.205.53.178/endo/pubrelations/patientInfo/cah.cfm
http://www.cc.nih.gov/ccc/patient_education/pepubs/mngadrins.pdf
http://caresfoundation.org/what.html
http://www.rch.unimelb.edu.au/publications/cah_book/
http://medlineplus.nlm.nih.gov/medlineplus/ency/article/000357.htm
http://cpmcnet.columbia.edu/texts/guide/hmg21_0013.html
http://www.findarticles.com/cf_dls/m3225/5_59/54952074/p1/article.jhtml
http://www.cah.org.uk/ - united kingdom (UK) .. what is CAH, stories, links

Plus the links listed on this web pages.. under the banner.  The John Hopkins web site is very good.

Symptoms of adrenal crisis

headache
profound weakness
fatigue
slow, sluggish, lethargic movement
nausea
vomiting
low blood pressure
dehydration
high fever
shaking chills
confusion or coma
darkening of the skin (see skin, abnormally dark or light)
rapid heart rate
joint pain
abdominal pain
unintentional weight loss
rapid respiratory rate (see tachypnea)
unusual and excessive sweating on face and/or palms
skin rash or lesion may be present
flank pain
appetite, loss