Kaye,

Sounds weird---no wonder the doc's are checking it all out!  Possibly to benefit of some family members too by the sounds of things.  You say that your siblings had diferent fathers.  As I do not know how many, it is hard to analyze.  All I know is what I have learned about genetics and CAH and all.  Not as Lynn writes it in her post, which seems to imply that carriers suffer symptoms, and if this is the case they are sufferers not carriers---however mild their symptoms may be.  Only thing I can surmise is that your Mother definately carries this CAH recessive gene and that she was extremely unlucky and met partners that did also.  Like I mentioned in my post the simple form is so common it occurs in every 100-1000 of the population and although this is theoretically possible---it makes them unlucky, especially for this to happen two times or ,more.

Sometimes there are other conditions that mimic CAH though and cause problems with high testosterone or cortisol etc.  So that would be my explanation and the above one where your family have been unlucky to have so many sufferers on different varying levels of severity.  I am open to such double bad luck happening occasionally---because like I said my brother had problems from the age of one and spent three years in Pendlebury and childrens hospital in the UK.  On top of his blood levels being checked all the time he had congenital hip disease, so my Mother and I now surmise that he had this which initially cause medical attention and then whilst in hospital having that fixed they discovered the problem with hs bloods due to his appetite and other problems.   We will never know or be able to test as he passed away and he would have been 37 years old now so it was some time ago. 

Sorry to hear about your problems, it is not easy when things are that way.

Hope your pampering yourself.

JH