Hello everyone! My name is Ronda and I have a son with CAH. He was diagnosed at 4 years old depite that we have newborn screening hear in Washington State. Our story is unique and hopefully a way of pioneering education to others. When JoJo was born in 1994. He was 5 weeks premature. He was very sick with numerous problems. he had the newborn screeing test while in the hospital 4 times. The results were positive! Unannounced to me.

When Jordan was 3 years 11 months, he devolped pubic hair acne and body ordor. After we were referred to an endocrinologist, he was diagnosed upon further investigation of Jordans medical records, we found that the pediatrician has know the result but had never disclosed them to use because "he didn't want to hurt the mother child relationship"

Jo Jo was 4 years old with the bone age of a 10 year old. I was devistated to learn what this all actually meant for him. This brings us to today. We are in middle of a civil suit whith the doctor and we now travel from Seattle to New York every 3 months  to visit with Dr. Maria New. She has given us a hope that Jordan will be taller that 5 ft. Jordan is the 25 th person in the world to start this protocal. There is hope for males that have been diagnosed late for hope of a better height. He is also on Lupron as a result of late diagnoses. JoJo is a bright 1st grader and id doing well. I would love to speak to other caretaker of children with cah/precocious puberty!. I hope to hear from all of you!