Hi, unfortunately, the sceinario that you describe is not so unique to the people on this board. Due to late onset CAH, late diagnoses of non salt wasters and, in our case, the malise of one large pharmaceiutical company who failed to admitt to a change in their formulation that caused many children's bone ages to advance rapidly (my 4 year old son aged to that of a 9 year old in one year and began going into puberty) theirby jeopardizing their LIVES as well as their growth potential. I am sure that you are familiar with the pain assosiated with this rapid growth for our children. In addition to all of this, there were children who actually lost their lives to this blunder and lack of acknowledgement. They knew that there was a problem because we have proof from dozens of parents on this board alone who either wrote, called, emailed, or sent their liquid cortef in to be tested for potency with a failing grade. These people took the time to continually call the company and speak to many different people and yet still nothing was done. One woman even contacted an attorney and had him write a letter to no avail. Finally, about two years after they had made the formulation change, they, working with the FDA, recalled the entire supply of liquid cortef citing that 8 out of 9 children were not getting the neccessary dose to keep them in good control and/or alive. Because the pharmaceutical company was so large and well know, the doctors were all hesitant to admit that the meds could be at fault. In some cases it was too late by the time they realized it. Some doctors even accused the parents of not giving their own child the "life susstaining meds" rather than suspect the company itself. I sleep very little since this and sufferred a great deal of depression after realizing just how fragile all this could be. The only reason my son is not among the casualties of this whole catastrophe is because he didn't come in contact with, or catch any illnesses during this time AND that I demanded another ped endo (the best in the world) to look at my son's charts. She told me that he was two days away from possible death. We, too, are currently working with Dr. New and her protocol with the hopes that we can better the damaged (post liquid cortef fiasco)height potential of just under 5' or less. We give my son a daily injection of the humatrope (GH) and keep our fingers crossed that it is worth all the pain, screaming and crying he does when he gets his shot each night. We are also in the midst of a civil suit against them and hope that something like this will never be allowed to happen to our children again. I hope you and JoJo do well and it all comes out good for you. Please feel free to email me so we can compare notes and talk further. My friend Reina held her 2 month old daughter in her arms as she died of a "heart attack" while on the bad liquid cortef. We have joined forces because there is strength in numbers. If anyone else want to talk about it please feel free to email me. Lynn P.S. Was your son on the liquid cortef or was it a simple case of malpractice?