MaheranThank you for making the time to respond to my question.
Noelle & Kay, Thanks for sharing your experience on growth hormone/Lupron ...will bring this up when we see the Pead Endo next.
JanetD, actually my son started off with 3x a day until he was deemed to be "under control" by the Pead Endo and switched to 2x a day dosing. Yr mail has certainly given me some "ammunition" for the next appt.
Julie H, the bloodtest protocol at the hospital is on the morning just before the appointment itself and before the morning meds. But results are only made known to us at the next appointment i.e. in 3 months time. This may sound completely unacceptable to logical people but we have had no choice but to tow the line since there are only 4 Pead Endo in this country (Malaysia). Thus whenever, we meet the Pead Endo, we will be discussing on bloodtest results of 3 months ago which is already redundant. Their excuse, the "test kit" for the tests are expensive thus they need to collect substantial sample to cover the costs ! @#$%&* This applies even when dosage is changed and bloodtests will still be done on a 3 monthly basis. And sadly, yes, his bone advancement is accompanied by a tiny pimple on his nose, light facial hair and BO. Thank you so much for your thoughts.
Carol, thanks for the insights. Realised there are always things to learn on this board. I would definitely be bringing up the issues your described and demand for more active treatment because my son just cannot afford any more trial and errors. He is 5 yrs, 36 kg and is 127cm tall with a bone age of 11 yrs. We've only been testing 17OHP, Testosterone and Plasma Renin Activity. We've never been asked for anything other than that, not urine, pregnanetriol or 17 Ketosteriods !
Mary, thanks for posting ... sometimes it helps when someone can help pick out what you're looking for in all the "tonnes" of literature that you've read.
Thank you all :)