Julie HAnonymous? If the outlook is good for your daughter, that is good. However those cases are very few and far between, and unfortunately, we never know the full story until these girls reach adulthood. The ones that are coming forward right now as adults in there droves are trying to tell us something. They use their names and they are not ashamed to present themselves in public and make a stand for all the baby girls whose fate has not yet been decided. Do you think that they would do this and risk losing their privacy if what they knew now in hindsight was not true? Why would they even be advising us against surgeries?
When our daughters are born with cah and have these problems, it is not shameful. It is not something that cannot be discussed on a message board. It is not a taboo subject.
Sensible to not tell certain people to protect their identity certainly, but it can be discussed without embarrassment with counsellors and other's too.
It is not shameful to need counselling. Counselling does not mean we are psychologically imbalanced or weak. It is there for a purpose to help us to deal with problems such as this. make us stronger in dealing with our imperfections in life on the inside and the outside. We cannot assume our daughters are never going to need it---when they get older they still have problems---even after surgeries that facilitate counselling due to cah. We see a note about a young girl on the board this week who started her periods and they are irregular. She needs counselling for this and other problems she has---but unfortunately she hasn't had them obviously. So we fix the outside and on the inside due to exposure to hormones, we don't fix what we ned to in the head and body and mind.
JH