Re: Re: Re: Re: Alternate Day Steroid Treatment To Carol (again)
10/7/01 6:30 PM

Carol - I'm actually beginning to question my dosage too. I am losing weight and not trying - in the last year I have gone from 135 to 119. I'm 5'2". I had approached my endo about taking the Dex elixer and he vetoed it. Otherwise I'm not quite sure how to get a smaller dose. If I divide the total of the two doses I come up with .412 a day (how do I do THAT?) I'm working a lot of hours and on my feet a lot so some of the weight loss is from that - though I do kind of wonder about it. I seem to lose weight when I'm undersuppressed - and at one point when I quit steroids for a while I got down to 105 lbs. (back in 1993) Way too thin for me! Of course I did go into crisis too. Guess I should get in for a blood draw. I have an inservice day on Friday so I could go then to have a blood draw. Thanks for your opinion  - it helps me to question things. I guess I might just have to demand the elixer. I'm the only patient my endo has that is on Dex - all the rest are on Prednisone or Hydrocortisone - he's not fooled with it because it seems to work for me.So he hasn't any experience with the elixer- hence his not wanting to prescribe it. Any ideas - please respond.

 

Susan A.

Susan A.
Rare Disease Search Engine, Homeschool Sites, Online Homeschool, Online Income, Ethical Adsense, Creative writing, Family Web Hosting, Christian Radio, Tulsa Parks