Hello friends.

I'm new to this board and I'm glad to see that there is something out on the web for CAH parents to communicate and distribute information.  As soon as I was told my newborn daughter had CAH and that it was extremely rare I felt so alone in the world (as did my husband).  It's good to see that there are other parents facing the same fears my husband and I are facing.

Our daughter is one month old and was diagnosed with SWCAH five hours after birth.  This lead them to check our three year old son who was just beginning to show signs of LO CAH.  When the endocrinologists first spoke to us they mentioned a one in four chance of us having a child with CAH since we were recessive gene carriers.  Now that our son has been diagnosed with it too, in a different form than our daughter, it makes me wonder if one of us (husband or me) has late onset or NSWCAH too?  I'm not familiar with how this works... if I remember right, doesn't the child receive one bad chromasome from each parent?  If we have one female with CAH and one male with CAH that would make me think that both of my husband's X and Y chromasomes are affected... do I understand it correctly, or could someone please explain?  Both of us have never shown signs or symptoms ourselves so I'm confused.  Side note... I have a daughter from a previous marrage age 7 who is not showing symptoms, and Dr's feel it's not necessary to test her.  Does this mean that we can't have any more non CAH children?  Have any of you gone on to have more non CAH children after having a CAH child?

Thanks for any light you can shed on this.