First of all, MAGIC has a web page ....

http://www.magicfoundation.org/

Here you will find information on the organization and what they do for families.  If you would like to read the quarterly newsletter (either on-line or they will mail one to you) you need to be a member.  I have found the newsletter to be very informative.  Just out of interest, I read all of the sections -- not just the CAH section.  Doing this helps put into perspective (at least for me) what I deal with having a daughter with CAH and what other parents deal with.  Cathy Kusch is the CAH division head -- she is a delightful, knowledgeable woman.  I would highly recommend that all CAH's parents check out this resource.

MAGIC Conference:  Last July, Olivia and I attended our first conference in Chicago.  It was wonderful and we will attend again this year.  It was great to meet other parents with CAH kids and know that they know and understand.  It was great to meet the CAH teens -- they are normal teens who do everything we want our kids to do. 

There were parents there who need help because of lack of interest from their local Ped Endo.  There were parents who were busy finding out about the lastest CAH research.  There were parents where everything (CAH-wise) was going OK.  I could go on and on.  But it was a place where I felt very comfortable talking to other parents about the CAH issues -- not something I do with friends or family.

The educational segments were great.  There was information for the "new" CAH parent as well as the ones who had been dealing with it for years.

Best of all it was a family conference -- so things were scheduled with our kids in mind.  There was day-care; a pizza party; bingo; hamburgers.  I found it to be very refreshing weekend.