Hi Amy Jo,

Not sure how often you visit but I hope you get this email. I was curious as to how your daughter was misdiagnosed. Why did it take so long to find out? If she doesn't have CAH what does she have. I hope you don't mind me asking these questions.

I don't know if you read my story but I have a now 4 month old that was diagnosed as a SW through NB screening. Through DNA we found out that he is a SV (simple virilizer). I am always interested in finding out cases of misdiagnosis. I have already talked to one other mom who experienced this.

Thanks!

Sandra