I want to thank everybody for their input.  I took her to her PCP who is very up on CAAH and in fact originally diagnosed her for the most part.  She was seen by another group and they kicked me out of the practice because I was insisting there was something wrong with my child and always intiminidating them.  I have to admit I did.  This PCP saw here and withing 15 minutes sat me down and said, "I think CAH" and went on to expalin what and all the good stuff and had her seen by an endo immediately.  This is why I feel confident with te PCP so much.

Anyway, she has itrtitation down there, maybe from sitting in the bath too long or something with soap in it.  Neither of my girls take bubble baths or anything like that!  She said Anne is growing very normally, took a urine test and the culture STAT.  It was all negative.  We are getting more blood work down tomorrow and seeing the endo in a few weeks when it's back.  I guess it was just me being sooo paranoid. 

I want to thank everybody for all the good advice and concern.  It's so nice to have someplace like this to come and find answers. 

Michele