Hi Sandra- Sorry it took so long for me to respond, I have been out of town for work.  I don't mind being asked questions regarding Erin's situation at all.  At birth the screening came back slightly elevated and her clitoris was slightly enlarged for the first 24 hours.  We live in a pretty small town in northern Minnesota, and the two neonatologists in our NICU knew of CAH, but had never seen nor treated it, so in a word, they freaked.  They did another screening at about 6 hours old that came back normal but her lytes, especially potassium were all out of whack.  Keep in mind, this whole time, they would not tell us if she was a girl or boy, even though, to us and my ob/gyn and all the nursery nurses she looked like a girl.  They transported her at 12 hours old to Minneapolis Children's Hospital where she finally saw a ped endo.  He was not convinced that CAH was the diagnosis or not with out the 24 urine test (ACTH or whatever, I forget the letters and their proper order).  He certainly did not think she was virilized to the degree that the other docs had indicated over the phone to him.  The state requires a chromosome test also so that was done, girl, as we all knew.  The 24 hour urine test takes about 2 weeks for results from our lab so he put her on hydrocortisone, as a precaution.  When the test came back it was slightly elevated so he kept her on the hydro.  At 3 months he took her off of it and ran another test which came back negative.  He re-tested again at 6 months, just in case the hydrocortisone was "masking" the results at 3 months.  He will officially (for the state) re-diagnose her at 1 year after a final test.  His thoughts are that her adrenal system was immature at birth, and took a little while to "kick in".  This is pretty common in preemies, not so common in term babies, as Erin was, but not unheard of.  We thank our lucky stars every day that she does not have CAH.   It took so long because our endo is cautious, I think that is the only reason.  Our state has a lot of stipulations regarding the tracking of such disorders so it sounds like the medical professionals have to jump through a lot of hoops to satisfy all parties.  Hope that helps.  Thanks again for asking.  AJ