Amy-Jo,

Thanks so much for your story. I am wondering if you wouldn't mind sharing the results (level) of her orignial ACTH test.  Has your daugheter's virilization gotten better? I am assuming she is not taking the medication? Do they think she might have the non classical kind or is it just immature adrenals? I think this is all very interesting. My son's diagnosis is backed up by the DNA but I wonder sometimes.... I will leave it at that.  I can tell you the whole story if you want me to email you.  We are going to see Dr. New at the end of this month and I wonder what she would say if I asked for another ACTH test.  I think that her geneticist said that they would possibley be able to do that at around a year old. But seeing that your daugher had hers done at 3 months, gives me some arguing points! :)

Thanks again and let me know if you still have those results.

Sandra