Here are some more booklets to print or to get:

http://www.cc.nih.gov/ccc/patient_education/pepubs/mngadrins.pdf

This web site is from NIH (National Institute of Health in Washington DC). It is a patient care booklet for adrenal insufficient and the last pages has picture on how to give the solu-cortef.

http://www.hopkinsmedicine.org/pediatricendocrinology/cah/cah1.html

Each year more than 7,000 patients from over 90 countries come to Johns Hopkins for medical treatment. Whether they seek a consultation, a second opinion or such complex treatments

Johns Hopkins International Patient Services, please contact us.

John J. Hutchins
Director of Marketing
550 North Broadway / Suite 201
Baltimore, Maryland 21205 USA
Telephone: +01 410 614 4334
FAX: +01 410 614 9150
E-mail: jhis@jhmi.edu

To make on-site appointments, including those through the Executive Health Program, please contact our appointment scheduler:

Telephone: +01 410 955 5057
FAX: +01 410 614 8370
E-Mail: globalaccess@jhmi.edu

Dr Maria New - http://pedsendo.med.cornell.edu/new.html

She has written any books and articles. The fact sheet on genetic testing is on the web. I have a patient care booklet that she wrote and it was very good (but it is not on the web – I can email or mail it to you – send me an email at preston@kreative.net

Or email
acarlso@mail.med.cornell.edu
(212)746-3450.

(212)746-3495
Anne Carlson

Cornell University Medical Center
Department of Pediatrics
1300 York Avenue, ROOM M-621
New York, New York 10021

http://caresfoundation.org/what.html

Has some fact sheets….

Kelly Leight, Executive Director
Cares Foundation Inc.
(Congenital Adrenal Hyperplasia Research, Education and Support)

P.O. Box 264
Short Hills, NJ 07078-0264

phone 973-912-3895

http://www.rch.unimelb.edu.au/publications/cah_book/

This is from Australia and a booklet for children and parents explaining the condition. You can print it off the web or order from

Australian Congenital Adrenal Hyperplasia Support Group.
http://www.rch.unimelb.edu.au/CAH/