To Diane, We are rather underestimating the power of human spirit to say that parents should have these facts hidden from them and never know they exist. How could they make a fully informed decsion about sex assignment and to leave the surgery bit otherwise. There are parent's out the that have adult children who now wish they had had all this information when it counted. BEFDORE their child had surgery. BEFORE they decided what sex their child was and decided to tell friends and family and start raising that child. The reason that I bring up all the other Intersex conditions and explain quite reasonably that they are no less important or less devastating to the parents whose children are born with them is because it IS relevant to cah when cah girls are linked with the label Intersex. It's not about the genitlia being affected only here, it is about other ways that androgen affects a female fetus and the way it influences her life thereafter. What I forgot to address from Sandra's post is that being Intersex does not mean being brought up as neither a boy or a girl but something else. These people advocate strongly that children are assigned a sex and parents informed asap after birth with all Intersex condtions. CAH NO EXCEPTION TO THE RULE. Then they advocate NO SURGERY in childhood but that it be left to adoloescence for the child to decided. I said in my last post this: "Are we going to be so jejune that we truly believe that after cutting here and there that we would change how little girls are going to feel as an adult by the environment we raise them in?" That can be said for any child with an Intersex condition after reading half the tragic stories. Surely parents know here anyway after reading of the Betsy's and the Cheryl's that cutting here and there will not determine a girls sexuality in adulthood. It is porven that you cannot cut away Intersexuality in ANY of the conditions. Time WILL tell Sandra. Like Wendy-Lee says, another 20 or 30 years and then analyzing the girls that didnt become affected because of dex will be a learning curve. Since no one can say why they are insensitive to it here, then what hope is there of changing such anyway I have to ask? Some of us are not. I don't belong on another group message board Diane anymore than you do, since I am a parent delaing with CAH just trying to educate a few people to reach into themselves and see the complexities of even trying to get a name changed. It would simply be TOO mammoth, whether we find it distasteful or not. Can it not be said that by forcing surgeries onto kids and idelas where sexuality is concerned is just trying to silence them and intimidate them into being something that simply they are not. They are sadly affected by these hormones in every way and either of those actions just serve to make us into bullies not parents. Half the CAH girls just talk about the surgeries and and examinations, but other's talk about wearing dresses and having things foisted upon themselves also. To say that we are offended by the term, we are basically saying that we are ashamed to be associated with it. To be ashamed of it is is what has driven surgeons to try and change appearances to young. It didn't work in the past and it never will. So that is why basically people come to the board and educate. T'would be little use talking amongst ourselves elsewhere when the education part needs to be quite clearly here where it counts. Pebbles