Re: Re: Your mistake is in assuming there's anything "factual" about the use of the term "intersexed" in regards to CAH (like I am the only one to make this mistake?)
10/26/01 3:07 AM
First of all I’d just like to say here “ditto” to Betsy’s post. I get tired with short ineffectual posts that fizzle into nothing because they lack substantial argument. If you could call this an argument. I’m just posting plain facts. For all I care they could change the term “Intersexed” to something else. Basically I’d still be here discussing the same but a different label on it. The packing would be different but the contents would be the same. I’m here to educate not vegetate. Move forward with these issues to a level where parents can see things more clearly from all angles. Would some parents have a problem with that? There are parents out there that have much worse than cah come their way in life. Let’s take Down’s syndrome for example. You can pick these kids out wherever you go, and parents must hate the word “Mongol” but people still use that term frequently. Their features are very strong, but no one rushed with a knife to correct them to make life any easier. Parents are quite able to cope with these conditions. Often they find the strength from somewhere and it is strength that they never thought that they had. What makes parents of children with cah any different? The ambiguosity can be dealt with in other ways that do not involve surgery as a baby. You call my post an argument Danny. It is based on concise, clear factual information. You said: “Sorry but your entire argument fizzles into nothingness in the light of this simple fact.” Nothingness is a place where nothing exists. The term Intersex exists. The facts that I stated exist. Many of your arguments back where: That you found this term offensive and hurtful and insulting. No reason in particular. Therefore there was no argument to “fizzle into nothingness” even coming in my direction here. No facts behind the ones who posted about how you are all offended in detail so that I could even put myself in your shoes here. I am trying to bring some balance to the Message Board in all this. Other parents see you post too and want to see the reasoning behind your thoughts on the subject. You may be offended at some of the issues but most of what I brought here was fact. I can hear the frustration in people’s posts when they post something opposing the word Intersex but not WHY. Quite frankly I could not care less what the word is. If any body deems it fit to change the term for some reason, then I’m sure that there will still be many more who will be unhappy with whatever else that they choose to they label it. The most important thing at the end of the day is that the whole issue that this term refers to is still not simply brushed under the rug. Facts like dust always have a habit of settling back in the same spot eventually so sweeping them under the rug is futile. Other parents who have children with other conditions leading to ambiguous genitalia that are presently termed “Intersex” conditions and who also find the word unpleasant will wish to follow suite and hop into the new term also IF one is found. Running away from something because it doesn’t sound right, is not a solution to dealing with the problem at hand. Parents have rights to information, and making others feel uncomfortable about relaying that information because they belong to a certain “camp” where sexuality is concerned is wrong. Or even perceiving that some belong to a certain “camp” where sexuality is concerned is wrong also. I surmised somewhere that some people assumed that somehow I was lesbian. Nobody could be further from the truth and I found that quite amusing. My husband did too. (Please don’t forget that people have rights to put themselves into other’s shoes and speak metaphorically.) Whenever we make decisions about something in life, we always research for the best options. We do our homework and we make sure that we are covering all our bases before we make our decisions. Especially when they concern our health or our children’s health. Dealing with a daughter with ambiguous genitalia in that respect is no different. So here is the “other” decision one can make for ALL parents to analyze. We have to have balance and this is it. Whether we use the term intersex or some other term. Just take the word intersex out of all that I have said here and replace it with the words of your choice if we are to avoid offense here. However, don’t you find that no matter what you replace the word with, the issue is still the same and it all leads to the same thing? Something that some people just do not seem to want to accept. The right to "informed consent" and to be everything that you were born to be when you entered this world. Unchanged in any way physically or psychologically.
Pebbles
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