RobertaAsk your ped endo about doing genetic testing with Dr. Maria New. He/she takes the blood from from you and your children (and your spouse - if you are married) locally and then sends it to Dr. Maria New in New York City (Cornell University). This is tell you exactly what type of CAH you and your child carry. My insurance paid for it. And it would be good for your children to know when they are planning a family or if you plan on having any more children. There is a link to Dr. Maria New web page and information about the testing on this web page below the banner (pictures) click on people/medical sites. The CARES web site also has alot of information about on-set or non-classical CAH. I have an older booklet about classical and non-classical CAH from Dr. Maria New if you want I can email it to you (preston@kreative.net).