http://www.cc.nih.gov/ccc/patient_education/pepubs/mngadrins.pdf Please go to this site and print this booklet. It is very important because it has step by step (with pictures) on how to deal with an adrenal crisis and give solu-cortef. The non-salt waster CAH or non-classical is milder form of CAH than the salt wasting form but they still can die from an adrenal crisis.

Here are some other sites to look at:

• CARES Foundation, Inc.
  (Congenital Adrenal hyperplasia Research, Education and Support)
  P.O. Box 264
  Short Hills, New Jersey 07078
  973-912-3895 (CARES voicemail)
  URL: www.caresfoundation.org
  email: caresfoundation@home.com

• National Adrenal Diseases Foundation. 510 Northern Boulevard, Great Neck, NY 11021. (516) 487-4992. http://medhlp.netusa.net/www/nadf.htm
• Applied Medical Informatics Inc."Congenital Adrenal Hyperplasia." (1997). http://www.healthanswers.com/database/ami/converted/000411.html (28 May, 1998).
• National Adrenal Diseases Foundation. "New Developments in the Treatment and Diagnosis of Congenital Adrenal Hyperplasia." http://www.medhelp.org/222/nadf5.htm (28 May 1998).
• Gale Encyclopedia of Medicine http://www.findarticles.com/cf_dls/g2601/0003/2601000348/p3/article.jhtml?term=adrenal

Also get a medical id.

This web site has many companies with medical ids:

http://www.childrenwithdiabetes.com/d_06_700.htm

This is a nice one because it has a water proof paper inside the band to write down the critical information…doctors name and amounts of meds, etc.

http://www.safetysportid.com/

 

INDIVIDUAL ORDERS - Safety Sport I.D. Bands with one information insert can be purchased for $6.99 each. Additional information inserts are $.25 each. Please send to us by postal mail with your payment:

Safety Sport I.D., Inc.
4546 Rutherford Drive
Marietta, GA 30062

(770) 650-0091