KathrynHi Nicole,
Yes my swCAH twins, now 9 have had bouts with haedaches. I have made a coralation(sp DANNY when can you add spell check!!) with missed meds and headaches, also in March the endo lowered their meds 2.5 mgs and within 3 days cronic headaches. And I returned to the old dosage... Thats another post!
When Morgan was not even 2 he got severe headaches and THEN had Bells Palsy, this is a terrible affiction with the (Ithink) 7th cranial nerve on one side of the face, you cannot blink your eye and cannot smile on one side, basically the one side of your face is paralized. We went to Ped neologist, and they did a cat scan and the only thing they found was a DEEP sinus infection, that took 2 courses of augmentin to clear up. The Bells palsy slowly cleared up, and thank the Lord has not returned.
Morgan this year had the bad headaches again and the Dr gave him meds for a sinus infection. And the Bad ones stopped.
I didn't know until this post about CAH'ers having problems with sinisutis. Let me know if I answered all your questions. :)) Kathryn