Debbie,

As a matter of fact so did I. I talked with Susan after my interview and she expressed a deep concern at the lack of adult followup on the childhood surgeries.  But rather than trading anecdotes with you I would rather read the puplished paper to see what treatment the various participants received and of course whether they were CAH or LOCAH since the "Living with CAH" study covered both groups.

Susan may even have considered me a success story, I know Dr. New still views me in that light. I have even been asked for my opinion on a couple of followup aspects of that study.

Joan