Hi Kaye,

Thanks for checking up on me. Yes, I'm home. I was able to catch an earlier flight home yesterday. I got in about 8:00pm. It was nice to sleep in my own bed. I think Jackson liked the hospital bed because he cried bloody murder when I put him in his crib at home. He ended up sleeping in my bed!

Anyway, I am happier than I have been in a long time. I think this has to do with the fact that I followed through with my plan to get the correct diagnosis. Although, I was secretly hoping that he wouldn't have CAH at all, I am very happy that I have a little less to worry about with him being a SV.  I was  also inspired by the fact that someday there will be a cure. I think it will be possible to have one in my son's life time. This makes me very happy.

Jackson is only on cortef for the time being. 2.5mg in the morning and 1.25mg at night. His 17ohp was at 680 which Dr. New felt comfortable with. I have to follow up in a month with my endo here. Dr. New also said that when Jackson is one year old they will do the bone age on the knee to see how he is doing.  The florinef will only be added if he is not getting good control with just the cortef.  So, I guess we'll see how it goes.

How is your little one doing? All recuperated I hope. It's funny because now when I think back about what  Laura said to me about the people she met that she wouln't have met  if it weren't for CAH and how wonderful it was. At the time I thought I don't care  who I meet I was so upset. Now I see that I have met some wonderful people who help pick you up when your down and let you know that no matter what we all have perfect children in our eyes.

I am glad to be home but I was joking with my husband when I got home because as soon as the sun was up this morning so were my other two boys 6 and 3!! They of course starting their  usual brotherly fights!! I looked at my hubby and said when is the next flight back to New York!!  Back to normal I guess!! That's a good thing!

Take care,

Sandra