Sudden Infant Death Syndrom & CAH
11/14/01 8:49 PM
When my son was born we were told that we were lucky to have him come home with us (after 28 days) because the medical field's theory is that many boys with CAH die in the first couple weeks of life and are misdiagnosed as having died from SIDS. They are led to believe this due to the fact that CAH is not gender specific and should present with an equal number of male effected babies as female. At present, it is female biased. This will hopefully be changed with the implementation of heel stick testing for CAH at birth. I took it upon myself to contact the Regional SIDS Organization (?) and spoke with a lovely man who said he had never heard of CAH before. He asked that I send him some articles on this disorder so that he could look into it. My questions are two-fold: 1) Has anyone else heard of this misdiagnosis before and... 2) Does anyone know of any good/informative articles that talk about the relationship of SIDS and CAH. I think that it could save lives if we inform people to test for CAH with the autopsy. This would possibly give these parents a heads up for future children that might be born with CAH. This time around they would know what to look for. Hopefully, with heel sticking for CAH becoming required by law all over, this will eventually be a mute point. Thanks in advance for your help.(:>)
LynnT
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