Hello everyone.

I just aquired the internet, so I thought I'd look up the disorder CAH. Both my children suffer with this disorder, so I was very interested. Michael is 12 years old......quite the cheeky chappie too! He was diagnosed at 2 weeks, after vomitting profusley and becoming very de-hydrated. I was told he has salt loosing CAH. I had absolutely no idea what this was, and I was terrified he was going to die. He was a big baby, born 2 weeks late by caesarian section (9lbs 7ozs) and I was still in hospital recovering when he became ill.  He has always taken his medicine very well, and he is aware of his condition and takes it all in his stride. Tomorrow I am going to the Town Hall to watch him picking up an award for one of the best achievers of last year in his school. That makes me SO proud. He is doing well, bone age advanced and he is overweight, but we are working on that! Stacey is 10 years old, and obviously diagnosed at birth. She has had 2 lots of surgery already on her genetalia, but again is doing good. She is not so 'grown up' as Michael, and I srtuggle to make her understand why she has to take her steroids. One of biggest fears is having to explain everything when she gets older. Sometimes I feel terribly guilty, especially having Stacey when I knew the risks involved in having another child. Unfortuneately for me, the coil did not do its job and we (my partner at the time) had a tough decision to make. I just hope my daughter can understand that when she's older.Finding out all these sites and support groups has really made me excited. It has also made me very angry, because I should have had some of this support given to me by my GP or consultant at the hospital. I am finding out things that I never knew.......and I have to say that this evening it has made me quite emotional. I split up with tmy kid's father in 1993, so I've spent a long time dealing with their illness on my own. I am sure that all these fabullous sites I have found, will mean the world to me.

I realise I've been waffling a little, so I'll stop there. Thanks for listening!!

Regards,

Kate Morgan.