Hi Kate,

Welcome. I hope that you get lots of good support on this board. I have a 5 month old son who was diagnosed at 1 month old by newborn screening done in TX. He was diagnosed as a saltwaster but after some more tests we have found out that he is not. He is a simple virilizer. However, still part of this CAH family.

At first I was totally in disbelief but now I am doing great. Partly because of the wonderful support I have received on this board. There are some very knowledgeable people on this board, who like you, have been dealing with CAH for many years. I too wish that you could have had some support in the beginning. 

It sounds like you have wonderful kids and that they are doing great! You'll find that most kids are doing just fine.  Don't get scared when you read the horror stories.  Also,don't feel guilty or regret what you did or didn't do. Regret is useless. Just focus on what you still can do. Everything that you did or still do is because of the love you have for your children.

Hope we hear from you again soon!

Sandra