Here are some web site (there are more on this page - click on the buttons under the banner):

• CARES Foundation, Inc.
  (Congenital Adrenal hyperplasia Research, Education and Support)
  P.O. Box 264
  Short Hills, New Jersey 07078
  973-912-3895 (CARES voicemail)
  URL: www.caresfoundation.org
  email: caresfoundation@home.com
• Endocrine Web describes itself as the largest web site devoted to thyroid, parathyroid, adrenal, and pancreas disorders. And one look shows why. Links to chat rooms and support groups.(but they don’t work and no information on CAH)

http://www.endocrineweb.com/

• National Adrenal Diseases Foundation. 510 Northern Boulevard, Great Neck, NY 11021. (516) 487-4992. http://medhlp.netusa.net/www/nadf.htm

• Applied Medical Informatics Inc."Congenital Adrenal Hyperplasia." (1997). http://www.healthanswers.com/database/ami/converted/000411.html (28 May, 1998).

• National Adrenal Diseases Foundation. "New Developments in the Treatment and Diagnosis of Congenital Adrenal Hyperplasia." http://www.medhelp.org/222/nadf5.htm (28 May 1998).

• Gale Encyclopedia of Medicine http://www.findarticles.com/cf_dls/g2601/0003/2601000348/p3/article.jhtml?term=adrenal

 

These are from www.aheatlthyme.com

Cortef. Fact sheet on this steroid. Covers its dosage, side effects, and complications http://www.ahealthyme.com/topic/topic100588942;$sessionid$EP2K2TQAADTEXWCYSYRTEMQ

 

• Definition Congenital adrenal hyperplasia by De Milto, Lori,. Definition; Description; Causes & symptoms Diagnosis; Treatment; Prognosis; and Prevention

http://www.ahealthyme.com/topic/adrenalhyper

Adrenal Virilism by Lampert, Richard H, ., . Definition; Description; Causes & symptoms Diagnosis; Treatment; Prognosis; and Prevention http://www.ahealthyme.com/topic/adrenalvirilism;$sessionid$EBVQQOIAACAS1WCYSYTDEMQ Intersex states. Turkington, Carol A. Definition Intersex states are conditions where a newborn's sex organs (genitals) look unusual, making it impossible to identify the sex of the baby from its outward appearance. http://www.ahealthyme.com/article/gale/100084794 The importance of newborn screening / In reply, Katz, Michael, Pediatrics, Sep 2001 Dr Hinman raises a number of important issues relating to newborn screening. He seems to agree with our call for equity and uniform quality of testing; however, he parts company with us when he argues that our demand for mandatory tests for very rare diseases is "uncritical" and not justifiable by cost-benefit considerations. http://www.ahealthyme.com/article/bellhowell/101274737 Definition The adrenal gland scan by Davidson, Tish is a nuclear medicine evaluation of the medulla (inner tissue) of the adrenal gland. http://www.ahealthyme.com/article/gale/100085001

• Cortisol tests., Flores, Janis O.

 

http://www.ahealthyme.com/article/gale/100084403

• Plasma renin activity. Flores, Janis O.

 

http://www.ahealthyme.com/article/gale/100083868

 

 

Adrenocorticotropic hormone test., Flores, Janis O.

 

http://www.ahealthyme.com/article/gale/100085004

 

solu-cortef

 

http://www.kcmetro.cc.mo.us/pennvalley/emt/hydro.htm

$2.39 a vial on line

 

http://www.allmed.net/catalog/showitem.php/2009