KathyHi Kate,
I too am new to this. I have an 18 month old daughter with simple virilizing CAH diagnosed just 2 short months ago. I have learned more from this board than in any doctor's office. We are going for our second blood draw on Dec. 6th. Adina H. sent me several websites during my original post. You might find them on one of the last pages of the board if the post is still there. They were very helpful for me when I started my binder for my daughter. I have felt so much better after talking to other parents and people with CAH. I would have never found these people if it wasn't for this board as we have no support group in Colorado. (Maybe I should start one!) Welcome, talk to us! We are here for you. Good luck with your next appt. Keep us informed.
Take care, Kathy