ValI think sometimes when you ask questions of your child's Doctor's and they don't appeaI^IIE6g them in full and settling your mind to rest, you should keep asking them until your happy. A lot of the time I made the big mistake of settling for answers that just did not in hindsight really settle my worries. Years later as I am researching on line and educating myself, half the questions I asked about my child's condition were never answered honestly. Not a one!
Now I do not bother to ask the doctors that are providing the clinical assessments. I just research the answers for myself or ask other parents who have actually been there and done that---and how they would do things differently. You get a much more honest version of events. It's not any harder to look for the answers yourself and if anything you come out a little better for it. Doctors are just doctors I found. They are not God and they are not my son's adrenal gland. At the end of the day I will be the one that has to come home and dose this stuff---so I will do it how I feel it should be done--since half the Endo's who profess they are "Top CAH Experts" cannot decide amongst themselves how the stuff should be dosed correctly. Looks like they will dispute it forever and a day actually I guess. Much to the sufference of more children with CAH.