It is so nice to hear a parent tell of their fears, I feel I am not alone in all of this. I am now pregnant, waiting to get far enough along to find out if this baby is affected or not. My first child was born unaffected, and DNA test results show that she is not even a carrier. So, unsuspecting, I decided on another baby, and lo and behold, CAH reared its head in my life. I am sometimes sad that I did not have my CAH baby first, as I do not know what my choices would have been if I had known I ran the risk of this the first time around. Now I have a two year old who brings every germ home imaginable, and I bite my nails constantly. Fortunately, I have been in such a cradle of support Doctor wise, living only 15 minutes from Yale New Haven Hospital in New Haven, Connecticut. I was surrounded by information and experienced Doctors from the start, it made it seem all that easier. I am a full time student of Chemistry and Forensics carrying a 4.0 GPA and had to take one semester off to care for my daughter, and the thought of returning to school and placing a 6 month old in daycare (CAH baby) makes chills run up and down my spine. I dearly want to go back and finish my work, but my worries of putting her in the care of someone right in the middle of flu season has spooked me away. I am currently looking for an in home nanny to get me through this first year. I realize that there needs to come a time that I let go, and I work on saying to myself, she has got to get a fever sometime, but I guess I sit here everyday sort of waiting for the other "shoe" to drop as I have not yet had to sort through a serious illness with her. Now I have the worry of another child affected and it scares me. Not because of the CAH itself, but because of what can happen to these beautiful children. As I chose surgery for my daughter, I spent the first few months researching the pros and cons in this area, and now that that has passed, I feel like a babe in the woods, sorting through all the rest of the tremendous amounts of information I read about here on the board. I suppose being pregnant and on the Dex treatment has muddled my mind even more, everything at this point so very confusing. I also am feeling great guilt and worry, on one hand hoping for another affected daughter so that my baby won't be alone with this condition in our family, and on the flip side, I am praying that this baby is not affected as this condition has greatly impacted my life. It is nice to hear how your daughter is, she sounds so wonderful, and if my daughter turns out to be so full of life as yours, then she will fit right in with the rest of us too. I come from an all girl family, and we were always the roughest, toughest girls you could know! (smile). Fist fighting with boys, biggest beer drinkers (when younger), best at sports, never girly girls. My two year old is a girly girl, but can handle herself any day in a tonka truck parade so I am happy! My family lives in California and the thought of travelling whether it be nationally or internationally is not something I have been able to brave, but like I said, I work on it daily. I have to remind hubby as well as myself not to look at baby sideways all the time, questioning why she tugs at her hair, or seems tense all the time, or is not yet sleeping through the night. Our first responses are: "Must be the Dex", but if we continue to do this, she will eventually use it as an excuse as well. I believe it takes much discipline and hard work as a parent to control fear when it comes to this, but with daily work and attention to detail on my reactions to things, I will overcome these things. My baby is so precious to me, and I am glad to have her grace my life. Keep working on your fears, you will get through it, and with the wonderful parents here on this board to lend a few words of support I know that they have gone before me, and that I can do it too! Blessings, KayeKaye