You have touched us all with the same underlying fears we all feel. In my case CAH makes me so acutely aware of their mortality, before with my first daughter the thought hardly evr crossed my mind, now evry time school calls I brace myself.

With CAH at least these children are managable. So many other conditions can be so much worse. I took the boys into the endo last week and I mentioned a friends kid with juvinile diabetites and the Dr said be thankful you have kids with CAH, the other condition is so much worse to deal with.

I have traveled with my boys, I just started out small( The most importatnt thing is NOT to be afraid to give the shot). I am a BIG traveller, so is my husband, we lived on sail boat and would spend 17 days at sea or Hiking the mountains of Nepal. A small piece of me is sad that they cannot experience that. But their is so much else that they can experience.

I wish I could give you a big hug, and talk about your fears. Talking about fears sometimes doesn't make them seem so huge.

LOL Kathryn