You have alread experience the power of support from all the people that have been generous enough to share their thoughts and experiences with you. I think that many of us have gone through the fear of losing a child due to CAH. It is only natural to feel this way especially when your child is so young. All I can say is that it really DOES get easier as your child gets older. For one thing, they can verbalize what is bothering them better and give you a "heads up" way before the symptoms actually occur. We just went through a stomach virus with my 6 year old son and believe me, we were terrified. When he was younger, the same type of virus put him in the hospital for 4 days. We have since learned that it is very important to have the shot ready and to inject him as soon as we think it's necessary. It made all the difference in the world this time and it renewed some of our trust and sense of power. Have you experienced an adrenal crisis on your own yet? I remember when I first brought my son home I walked around as if I was holding my breath. I realized that I was just terrified waiting for him to have his next crisis. After he did, I could breath again knowing that we had survived the worst and everything was still intact. Some CAH children never have an adrenal crisis or have very few problems health wise. CAH doesn't automatically mean major health problems throughout their life, but keeping abreast of the latest information on treatment should help to empower you and keep you one step ahead of the game. Knowledge is power! Just this week we went through the stomach virus with him (see post below) and he had vomited 8 times and had a fever of over 103%. This time we were prepared to give him the shot. As soon as he appeared to be heading toward an adrenal crisis we injected him. We also gave him Tylenol suppositories to bring down the fever. It worked like magic. Has your endo given you the injectable meds for emergencies? Did they also have you practice on an orange or the like until you felt comfortable? Knowing that you can do something to help your child IF she gets sick can take the edge off and help you to relax and enjoy your child to the fullest. Make sure to bring an emergency pack with you wherever you go and be mindful of other children that are known to be sick. We have always put my son out in the "main stream" of day care and school and we feel that that is what has helped him strengthen his immune system. His non-CAH sister is the one who always seems to come down with everything that is in the air. He has actually succeeded in avoiding some of the illnesses that she brought home in the past. All you can do is use common sense and love your child everyday. Washing the hands often can also help in lowering the chances of getting sick. I asked my son the other day, "Do you know how much Mommy loves you"? He replied with a giggle, "Too much!" At least I know that he understands how precious he is to me. Perhaps the next time you feel yourself worrying "too much", you can just hug your child and give her plenty of kisses. Soon you will feel the fear being replaced with joy and laughter. Children are a gift from God and we should enjoy them at every chance we get. I know it's hard to put the "what ifs" of CAH out of your mind but the good people of this board will always be here to help you. They are generous and compassionate people and a God send as far as I am concerned. I hope you will come to feel the same. Feel free to email me if you want to "talk" further.