-My daughter is 4 in a half and has CAH due to the 21 Hydroxlase deficiency. (salt waster)

-Her growth has always been well through the years. Bone age taken at 3 years and it was perfect.

-Her levels have been well controlled until the Cortef Suspension recall a couple of years ago. They are still not where they should be but they are at a safe level.

-We have been instructed to give the largest dose of Cortef (now on pill form) in the morning. (6 am) His feeling was this is when the body naturally makes the most. When asked about the conflict with other endos. dosing differently he agreed that some do it differently. We have done it this way, it works for us. Her endo. also said he felt that his job as an endocrinologist caring for CAH patients was more like a trade because the care is not black and white. It is always being fine tuned to fit the need for the patient. Almost like snow flakes, no two are alike. So keep that in mind. What one needs another may not.

-Don't ever apologize for surveys or questions. That is what the board is all about silly. I always include my daughter's deficiency because when doing a poll I like to see if that also plays a difference. This CAH is such a mystery.

*I am not sure if you read the earlier post about morning and evening doses but that would be something to copy and take to your endo. next visit. I think Val posted it a page or two ago. Good luck to you!