Today they put the article in about newborn testing in Ohio and there is a section that tells Caleb's story there. At least some of it.

For the most part the article was well written I thought with the only flaw being the statement that if the disorder is screened for at birth and caught then there usually are no other problems ( Yeah like I wish that were true!) .

I hope the right people read this and can help solve our problem with the testing.

If you want to  read the article go to

www.toledoblade.com and scroll down the page. It was a pretty big article so you won't be able to miss it.

Have a wonderful holiday season everyone!